May 26, 2015

Facebook is a friend to those suffering rare maladies - San Francisco Chronicle

There are several Facebook groups dedicated to the disease, which affects more than 20,000 people in the U.S. And via Facebook, the 27-year-old New Jersey resident learned about and signed up for a clinical trial evaluating the quality of life of people with EB. Many people with rare medical conditions are using Facebook groups to offer each other support and even encourage drug companies and...

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